Observational Study to Describe Health-Related Quality of Life and Measure Disease Burden Among Patients with LQTS Types 2 and 3 Grant uri icon

abstract

  • This is a cross-sectional observational study designed to assess the disease burden and quality of life in individuals with LQTS 2 and 3. Each participant will answer each PRO only once over a 6-month period. The study will initially conduct a pilot phase with up to 10 participants to evaluate feasibility, data collection methods and outputs, and participant recruitment processes. Based on the findings from this initial phase, the study may be expanded to include up to 200 participants.

date/time interval

  • July 2025 - January 2027